The Hardest Thing

Sarah at thestayathomesoprano.com writes about her experiences as the mother of her oldest son Taylor. Who has autism. Her writing style is vulnerable and heartfelt, which is refreshing and worth checking out.

She wrote a blog post titled "The Hardest Part". where she points out that every stage of development has hard parts. This is of course true for all children not just those with special needs. It is also true that the hard parts look different for parents with a child with special needs.

Sarah's post shares her emotional process around knowing Taylor will someday need to go live in a group home. It is a heavy post. And it is very real.  Re-posted here:

"I just read a blog post where the author was asked to list the hardest thing about autism, and she said, people.  For me, the hardest thing changes as time and life change.  A long time ago, it was other people not being kind, instead very very judgmental. Later it was hitting and pinching.  Later still it was loneliness and so on.  Today, it is fear…pain. Fear of giving up, pain of letting go.

Many people have heard the song “Say Something” by a Great Big World and a cover by Pentatonix.  Most see it as a romantic or familial toned song.  I ask that you close your eyes and listen to it again, trying to imagine yourself as a mom who has to give up her young teen child (or any age, for that matter) to a group home…to live away from his/her family.  Imagine this is the first day of that chapter of their lives.  Imagine the feelings of failure, the guilt that overwhelms.  Think of the sadness, the loss, the dashed hope, the feeling of giving up. Think of them in the new room of their child. Imagine the car ride home with an empty seat in the back…

This isn’t an ‘if’, it’s a when.  It isn’t today, nor tomorrow, the next day, or the next.  I hope it’s later, not sooner, but it will happen.  This happens everyday.  Parents have to give up their kids to a group home.  Before people say something, I do know I didn’t fail.  I know I shouldn’t feel guilty, like a failure, or that I am giving up.  I know I’m not giving up.  I know it will be the best for him.  I also know it isn’t goodbye.  But it is goodbye to life as we know it now, and that feels like enough of a goodbye to me.  I know we can visit; I know we can bring him home to stay with us as much as we would like, but tell that to a mom who is giving up her baby, placed in her charge by God Himself.  No matter what I know in my head, I know my heart will wait until that time comes to start working to reconcile itself to believe what the head says.

On that day, when we are standing in the doorway of his new room, tears will flow freely.  Guilt will overwhelm.  My heart will be pleading with my non-verbal son “Say something!  Please!  Tell me you love me.  Tell me you know I love you.  Tell me we don’t have to do this.  Tell me you forgive me.  Tell me I didn’t fail.  Tell me you understand.”

I know it will be okay.  I know I will be okay.  I have faith in Jesus that He’s going to have it in his hands, have Taylor in his hands…have me in his hands.

But if you ask me today what is the hardest part?…. knowing this is my future."